Construction and validation of a booklet for patients with chronic kidney disease on hemodialysis

Introduction: Kidney disease is considered a major public health problem, as it causes high morbidity and mortality rates and also has a negative impact on the health-related quality of life of these patients. Objective: Develop and validate an educational, playful and didactic booklet to improve the quality of life in chronic kidney disease patients undergoing renal replacement therapy. Methods: Methodological study, developed in four stages - literature review with search totaling 11 scientific articles from the last 5 years, 3 from the Virtual Health Library, in 2021 and 2022, published in Brazil, 7 from the Scientific Electronic Library Online, from 2020, 2021 and 2022, with 3 published in Brazil and 4 in the United States of America and Google Scholar only 1 article published in Brazil, year 2022. For structuring the theoretical content, selection of images, constitution of the material, validation of the booklet by judges , in this case specialist nurses, developed from May to August 2023. For data collection, an integrated instrument was used containing the variables: language, image and content, and a Content Validity Index value equal to or greater than 0.80. The levels of agreement and pertinence of each item ranged from one to four (1-completely agree; 2-partially agree; 3-agree and 4- completely agree). Results: The booklet was built from the literature review in the survey of 11 articles with the following themes: What is chronic kidney disease, main causes and symptoms of the disease, risk factors, diet, hydration, physical activity physical therapy, stress management and emotional support, open communication with the health team, self-esteem and image disorders, care with arteriovenous fistula and hemodialysis catheter, rights of chronic kidney patients. So far, 3 judges have participated in the study in the content validation stage, with a content validity index equal to or greater than 0.89 and 1.0, highlighting the item quality of life and physical activity of chronic kidney disease, considered item 4, with approval of 100% of the judges. Conclusion: Through the analyzed data, the elaboration of the booklet was validated by the judges, so that this resource can collaborate in improving the quality of life of chronic renal patients in renal replacement therapy.